Céline Dion Is Working Hard on Recovering From Stiff-Person Syndrome, Her Sister Says

Céline Dion has stepped out of the spotlight recently to focus on her health after being diagnosed with a rare neurological disorder in 2022. In an emotional Instagram post in December, Dion announced she would be postponing her 2023 spring tour to 2024 and canceling eight of her summer 2023 shows altogether, citing health concerns. Then in May 2023, she cancelled the tour altogether.

“I’ve been dealing with problems with my health for a long time, and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through . . . It hurts me to tell you that I won’t be ready to restart my tour in Europe in February,” Dion captioned the announcement video in December.

In the video, Dion disclosed that she’s been diagnosed with “a very rare neurological condition called stiff-person syndrome, which affects something like one in a million people.”

Stiff-person syndrome (SPS) is considered an autoimmune movement disorder, and it affects the central nervous system. The disorder is characterized by intense muscle spasms and abnormal posture. In some cases, SPS may become so severe it limits a person’s ability to walk or move, according to the National Institute of Neurological Disorders and Stroke. Women are much more likely to have SPS when compared to men, with symptoms usually developing between ages 30 and 60, Cleveland Clinic reports.

“Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to. . . . I’m working hard with my sports-medicine therapist every day to build back my strength and my ability to perform again,” Dion said. “But I have to admit, it’s been a struggle.”

The singer has been relatively private since announcing her diagnosis, but her sister Claudette recently provided an update in an interview with Le Journal de Montreal, telling the publication that she is working hard on her recovery. “I honestly think she needs rest most of all,” Claudette said in an interview statement translated from French. “She always goes above and beyond, she always tries to be the biggest, the strongest. At some point, your little heart and your little body speak to you. It is important.” Claudette also reiterated that her sister is dedicated to her recovery. “We trust her, it’s in her. She’s very disciplined in everything she does in her life.”

Treatment for SPS depends on the individual but may involve medications (including antiseizure medications, benzodiazepines, and/or anti-inflammatories) to manage muscle stiffness, spasms, and pain. Physical therapy, massage, water and heat therapy, and acupuncture have shown to be effective options as well, notes Cleveland Clinic.

Dion became emotional as she reflected on the love she has for her fans in her December post. “I miss you so much,” she said. “I miss seeing all of you. Being on the stage. Performing for you. I always give 100 percent when I do my shows, but my condition is not allowing me to give you that right now.”

“For me to reach you again, I have no choice but to concentrate on my health at this moment. And I have hope that I’m on the road to recovery. This is my focus and I’m doing everything I can to recuperate. I want to thank you so much for your encouraging wishes of love and support on my social media. This means a lot to me.”

– Additional reporting by Alexis Jones